{"id":13158,"date":"2019-09-20T09:00:51","date_gmt":"2019-09-20T08:00:51","guid":{"rendered":"https:\/\/www.new-directions.co.uk\/socialcare\/?p=13158"},"modified":"2019-09-18T12:34:32","modified_gmt":"2019-09-18T11:34:32","slug":"caring-for-someone-with-dementia","status":"publish","type":"post","link":"https:\/\/www.new-directions.co.uk\/health-social-care\/2019\/09\/caring-for-someone-with-dementia\/","title":{"rendered":"Caring for someone with dementia"},"content":{"rendered":"<h2><a href=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-13189 aligncenter\" src=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06.jpg\" alt=\"Caring for someone with dementia - #LetsTalkAboutDementia\" width=\"700\" height=\"96\" srcset=\"https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06.jpg 1500w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06-300x41.jpg 300w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06-768x105.jpg 768w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06-1024x140.jpg 1024w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06-250x34.jpg 250w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V06-200x27.jpg 200w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/h2>\n<p>Many of us know of someone who has been diagnosed with Alzheimer\u2019s or dementia, whether that\u2019s a friend, neighbour, family member, or through our field of work. Globally, the number of people living with Alzheimer\u2019s and dementia is on the rise, which means more of us are caring for someone with dementia. It\u2019s estimated that figures will rise from 50 million cases around the world in 2018 to a staggering <a href=\"https:\/\/www.dementiastatistics.org\/statistics-about-dementia\/\">152 million in 2050<\/a> putting greater pressure on the social care sector. That\u2019s a predicted increase of 204%, marking Alzheimer\u2019s and dementia as one of the most pressing global health concerns of our age.<\/p>\n<p>A new case of dementia or Alzheimer\u2019s is diagnosed somewhere in the world <a href=\"https:\/\/www.worldalzmonth.org\/about-dementia\">every 3 seconds<\/a>, mostly affecting people over the age of 65. In the UK, <a href=\"https:\/\/www.alzheimers.org.uk\/\">1 in 14<\/a> people over the age of 65 have dementia. However, it is not a natural part of the ageing process and can even affect people at a much younger age. This is known as early onset dementia and in the UK, over <a href=\"https:\/\/www.alzheimers.org.uk\/\">42,000<\/a> people under the age of 65 have early onset dementia.<\/p>\n<p><a href=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-13162 aligncenter\" src=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2.jpg\" alt=\"Facts about Alzheimer's and dementia\" width=\"700\" height=\"845\" srcset=\"https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2.jpg 1500w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2-249x300.jpg 249w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2-768x927.jpg 768w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2-849x1024.jpg 849w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2-250x302.jpg 250w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2-200x241.jpg 200w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V05-2-166x200.jpg 166w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/p>\n<h2>World Alzheimer\u2019s Month &#8211; caring for someone with dementia<\/h2>\n<p>A diagnosis of Alzheimer\u2019s or dementia can be life changing for a person and their family and friends, at whatever age it is diagnosed. Therefore, knowledge and recognition are crucial in tackling any stigma associated with it, developing an understanding of the disease to help people cope with their diagnosis, and caring for someone with dementia.<\/p>\n<p>September is <a href=\"https:\/\/www.worldalzmonth.org\/\">World Alzheimer\u2019s Month<\/a> \u2013 a campaign to raise awareness of the disease and tackle any stigma associated with it. The aim is to get people talking more openly about dementia and Alzheimer\u2019s, helping to improve understanding of the disease and support those living with it. Here\u2019s some useful information to get you started\u2026 So, #LetsTalkAboutDementia<\/p>\n<h2>What is dementia?<\/h2>\n<p>Dementia is the term used to describe symptoms like memory loss and difficulty thinking, problem solving and communicating. Although many people think dementia is just forgetfulness, it actually covers a range of other symptoms too. When caring for someone with dementia, you might come across symptoms\u00a0 including:<\/p>\n<ul>\n<li>Losing track of the date, time and where you are<\/li>\n<li>Difficulty judging distance and space<\/li>\n<li>Struggling with everyday tasks that you\u2019ve done many times before<\/li>\n<li>Changes in behaviour and mood<\/li>\n<li>Difficulty keeping up with conversations, communicating and finding the right word<\/li>\n<li>Trouble concentrating, planning and making decisions<\/li>\n<\/ul>\n<h2><a href=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-13160\" src=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02.jpg\" alt=\"Symptoms of Alzheimer's and dementia\" width=\"700\" height=\"527\" srcset=\"https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02.jpg 1500w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02-300x226.jpg 300w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02-768x579.jpg 768w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02-1024x771.jpg 1024w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02-250x188.jpg 250w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02-200x151.jpg 200w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V02-265x200.jpg 265w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/h2>\n<h2>Types of dementia<\/h2>\n<p>Although it is not a visible illness, dementia is a progressive disease of the brain that comes in different shapes and sizes. Each type of dementia may have slightly different symptoms and underlying physiology, which is important to understand when caring for someone with dementia:<\/p>\n<ul>\n<li><strong>Alzheimer\u2019s <\/strong>\u2013 a slow, progressive form of the disease caused by abnormal proteins in the brain which cause nerve cells to die, damaging the structure of the brain<\/li>\n<li><strong>Vascular dementia<\/strong> \u2013 a form of the disease that can happen more suddenly following a stroke, where brain cells are damaged and die due to restricted blood flow caused by damaged or narrowed blood vessels<\/li>\n<li><strong>Mixed dementia<\/strong> \u2013 a combination of more than one type of dementia with a mixture of symptoms from both<\/li>\n<li><strong>Dementia with Lewy bodies<\/strong> \u2013 closely related to Parkinson\u2019s disease, this form of the disease is caused by tiny abnormal structures in the brain called Lewy bodies, which develop inside brain cells and cause them to die<\/li>\n<li><strong>Frontotemporal dementia (including Pick\u2019s disease)<\/strong> \u2013 a form of dementia that affects the front and side portions of the brain, with abnormal clumps of protein in the brain that causes cells to die<\/li>\n<\/ul>\n<h2><a href=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-13161\" src=\"https:\/\/www.new-directions.co.uk\/socialcare\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2.jpg\" alt=\"Types of dementia\" width=\"700\" height=\"527\" srcset=\"https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2.jpg 1500w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2-300x226.jpg 300w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2-768x579.jpg 768w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2-1024x771.jpg 1024w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2-250x188.jpg 250w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2-200x151.jpg 200w, https:\/\/www.new-directions.co.uk\/health-social-care\/files\/2019\/09\/SocialCare_Alzheimers_Blog_Infographic_730x486px_V04-2-265x200.jpg 265w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/h2>\n<h2>Managing dementia<\/h2>\n<p>Despite it being such a prevalent disease, there is currently no known cure for dementia. In the UK, dementia is the only condition in the top 10 causes of death that has no cure. We can only manage symptoms and continue with vital research into a cure for the future.<\/p>\n<p>There are a range of treatments that can help to manage symptoms of dementia which may be more effective for some individuals than others. Drugs are available to help with some types of dementia, but medication may not be the best approach for all dementia sufferers. Other therapies such as counselling, Cognitive Behavioural Therapy, cognitive stimulation and cognitive rehabilitation may be more suitable. It has also been shown that life story work and sharing memories can be beneficial, alongside music, singing, art and keeping physically, mentally and socially active too.<\/p>\n<p>Although there is no cure, research is being carried out by organisations like Alzheimer\u2019s Research UK and The Alzheimer\u2019s Society and we hope that one day, a dementia diagnosis will have a completely different meaning and prognosis. In the meantime, these charities offer information, advice and support for dementia sufferers and their families, and they are vital resources for many who are caring for someone with dementia.<\/p>\n<p>&nbsp;<\/p>\n<h2>Craig\u2019s first-hand advice for caring for someone with dementia<\/h2>\n<p>Everyone\u2019s experience of Alzheimer\u2019s and dementia is different, and every person diagnosed with the disease will follow their own unique journey. This means that what works for one person may not be beneficial for another, which is something that many carers discover when they are caring for someone with dementia. Craig from New Directions has experienced Alzheimer\u2019s in his family several times and he shares some of the practical tips and advice that he found helpful to cope with the diagnosis:<\/p>\n<blockquote>\n<h3>In the early stages, I think it\u2019s important to be led by the sufferer as to what they can\/should do.<\/h3>\n<\/blockquote>\n<p>All three people who I have seen suffer with Alzheimer\u2019s reacted in very different ways, and so there was no point trying a one-size-fits-all approach. They may be desperate to hold on to as much independence as they can and will be determined to do things for themselves for as long as they can. It\u2019s tempting to try to treat them almost like children straight away because you know which way things are going, but I think this leads to a lot of frustration and upset for them if they want to maintain their independence for as long as possible. On the flip side of this, I found my grandmother just kind of shut down, almost like she gave up straight away. We tried to encourage her to do things, but she just wanted to be looked after. So, in short, my advice is to be led by the sufferer and try to be sensitive to the way they deal with the news.<\/p>\n<blockquote>\n<h3>Take whatever help you can, as often as you can!<\/h3>\n<p>&nbsp;<\/p><\/blockquote>\n<p>It seems obvious, but I think a lot of people feel guilty about accepting help to look after their loved ones, almost as if they feel they are passing them off as somebody else\u2019s problem. The truth is, trying to look after someone with Alzheimer\u2019s (while dealing with your own emotions around the situation) can be absolutely exhausting and emotionally devastating. If someone offers to sit with them for a couple of hours for you to go out, do it! If you can find a support group, get involved with it. If there is a volunteer to help in some way, accept the help. If you find someone to speak to about how you are feeling, speak to them. Because the truth is, even though your loved one has had the diagnosis, it is going to impact you and everyone around you, and it\u2019s ok to admit that you are hurting and that you need help.<\/p>\n<blockquote>\n<h3>Involve them in things as much as you can and don\u2019t avoid talking to them.<\/h3>\n<p>&nbsp;<\/p><\/blockquote>\n<p>I saw some family members who felt awkward about speaking to someone who was ill because the conversation could be so erratic and unpredictable, or you may end up having the same conversation over and over again as their memory begins to deteriorate. But a day will come when you won\u2019t be able to spend time with them anymore, and it can be a horrible feeling to realise that you didn\u2019t spend as much time with them as you could. It\u2019s just like with any illness &#8211; be intentional about spending time with them while you are able to and don\u2019t shy away from time together just because you might find it difficult. They need to know that you still love them.<\/p>\n<blockquote>\n<h3>Realise that at some point, there will be difficult conversations &#8211; if you can\u2019t have them yourself find someone who can.<\/h3>\n<\/blockquote>\n<p>My father in law, in particular, has always been a very capable, very independent man. My mother in law doesn\u2019t drive, so he was solely responsible for getting them around. But we realised one day that it was no longer safe for him to drive anymore. On one occasion, he was having a particularly bad day and his concentration wasn\u2019t great. They were on the way to do some shopping (a journey he had made hundreds of times before) and he got lost. When my mother in law tried to give him directions, he couldn\u2019t follow what she was saying and almost went through a red light. We had to sit him down that evening and tell him that he had to give up his license and his car, and to him that was a huge blow to his independence as he would have to rely on us to get anywhere. He tried to convince us that it was just a one off and got quite upset. My mother in law and wife got upset because of how it affected him too, but to let him carry on driving at that point would have been dangerous for him and for others. It\u2019s horrible when you have to start making difficult decisions for your loved ones, which is why (as early as possible) you need to find someone you can rely on to have those conversations when the time comes.<\/p>\n<p>&nbsp;<\/p>\n<p><em>If you need further advice and support with dementia or Alzheimer\u2019s, Craig recommends taking a look at all the useful information available on the <a href=\"https:\/\/www.alzheimers.org.uk\/\">Alzheimer\u2019s Society website<\/a>. He found it to be an invaluable resource and they have a <a href=\"https:\/\/www.alzheimers.org.uk\/get-support\/national-dementia-helpline\">National Dementia Helpline<\/a> available on <strong>0300 222 1122<\/strong> if you ever need a friendly ear.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>What are Alzheimer&#8217;s and dementia and how can you cope with caring for someone with dementia? #LetsTalkAboutDementia for World Alzheimer&#8217;s Month.<\/p>\n","protected":false},"author":339,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[307,304,308,310,303,309,305,306],"class_list":["post-13158","post","type-post","status-publish","format-standard","hentry","category-news-events","tag-letstalkaboutdementia","tag-alzheimers","tag-care","tag-caring-for-someone-with-dementia","tag-dementia","tag-dementia-care","tag-world-alzheimers-day","tag-world-alzheimers-month"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>Caring for someone with dementia : New Directions Health and Social Care<\/title>\r\n<meta name=\"description\" content=\"What are Alzheimer&#039;s and dementia and how can you cope with caring for someone with dementia? 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